Hey everybody,
Been awhile since I've updated on my Brody man so I thought I would just leave a short note and a hello. Sorry Phyllis to break your blog run:)
We saw Brody's nephrologist today, things are looking good for Brody's kidneys. Dr. thinks they have recovered 100% from his occurance almost a year ago (March 6). Brody has been sick with colds or viruses on and off for the last couple of months thanks to his big sissy who started preschool this year. He seems to be holding stable though and has not had an infusion since August. His Haptoglobin dropped (still in normal range but getting close to low range) the time before last but has come back up. So we will recheck next week to make sure everythings still good. They were hoping it was just because he was sick when he had the labs done.....well see. As we all know we can't ever get "to comfortable" with things being normal. Just can pray for the best and try to live as normal as a life as possible.
Anyway I hope all is well with your families and your amazing children. God bless
Comment
Comment by Linda Burke on March 5, 2010 at 2:54pm
Comment by Cheryl Biermann on March 5, 2010 at 11:43am
Comment by Phyllis Ann Talbot on March 5, 2010 at 7:46am WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
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