We just took Isla yesterday for a soliris treatment. She had been sick a few days ago and we had a blood test done to make sure her ahus wasn't kicking in. Her Hemoglobin had actually went up to 10.8(labs week before showed Hemoglobin at 10.2). Her platelets were 250. We went for her infusion yesterday and her Hemoglobin had dropped to 9.9 and platelets were 170. Our doctor was OK with the results and said there was no need for concern. Her creatanine was up some to 1.6 but he said probably a result from the recent sickness. Now today she is passing blood in her urine. This has us very worried. The thing is she is she doesn't seem to be dehydrated. she is having a normal amount of wet diapers and seems to be in good spirits. We are just worried about the blood in the urine. We have called the doctor but have yet to hear back. We just are frustrated that we just had a treatment but are still having this situation. Also we don't want to be paranoid and just drive the doctors crazy. At the same time, this is our daughter and we are worried to death. I was just wondering if any of you guys go through anything similar to this and what to do about it. We trust the doctors but we are so inexperienced with this disease. Any info is appreciated as always. Thank you.