Jack has new kidney!
We received 'the call' from MGH on Sunday afternoon and Jack was in surgery at 2:00 am, Monday morning. He received both plasma pherisis and his first dose of Soliris prior to surgery and had a second infusion of Soliris last night. Before getting off the operating table he had already produced a liter of urine...his latest creatinine level today was .9. In the PICU now, but will probably move to the Transplant unit in a day or two.
He's doing great and is SO HAPPY!
Views: 7
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Comment by Cheryl Biermann on June 15, 2011 at 11:57am -
Simone!
How exciting! Congratulations-We will pray for Jack's continued recovery!
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Comment by Dana M Simone on June 15, 2011 at 9:42am -
Thank you, everyone! We are all walking on clouds right...enormously grateful for the care of a superb medical team, wonderful family and friends. God is good!!
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Comment by Svetlana Finley on June 15, 2011 at 9:29am -
Awesome!!!! 0raying for fast recovery!!
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Comment by maria vicenta carratala rios on June 15, 2011 at 9:18am -
it is a wonderfull notice. My son will be 9 months with a kidney trasplant with Solirs, our life have changed. I wish Jack all the best¡¡¡¡¡¡.
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Comment by Phyllis Ann Talbot on June 15, 2011 at 8:42am -
Dana - yes - Hyde had his first dose of Soliris one week prior to t'plant (we had the luxury of a non-related living donor), then the morning of the surgery, the following day, 1 week after that, and then every other week since then. We might EVENTUALLY spread it out a bit - but in no rush and going to be very conservative with that - don't want to rock the boat too much. SO excited and happy for Jack and your entire family - tell him Hyde says hey and make sure to enjoy all the popsicles and bananas you can eat!!! ;-)
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Comment by Amy Swarbrick on June 14, 2011 at 10:39pm -
Yay, how exciting! We will keep praying for his health and recovery.
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Comment by Linda Burke on June 14, 2011 at 10:38pm -
WOW!!!! Such terrific and exciting news - I'm sure that you're more than a bit exhausted (mentally/physically/etc) so remember to take care of yourself, too. It's wonderful to hear that Jack is in such great spirits - our prayers are with you for Jack's rapid recovery with only sunny days ahead.
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Comment by Grace on June 14, 2011 at 9:19pm
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What a fantastic graduation present! though any old time will do ;) Jack's whole family must be so excited and happy. I hope the kidney continues to function beautifully and Jack enjoys the best of health.
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Comment by Dana M Simone on June 14, 2011 at 9:00pm
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Thank you, Phyllis! Is Hyde on an every other week schedule for Soliris? The plan is for Jack to get once a week for the next 4 weeks, and then go to every 2 weeks. It is so awesome to hear that Hyde is doing so well...keep the miracles coming!
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Comment by Phyllis Ann Talbot on June 14, 2011 at 8:41pm
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Oh, this is SOOOOOO exciting!!!! We are 4 mths on and so far so good. Let us know and feel free to yell with any questions.
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