The Atypical HUS Foundation

Meeting in London family Patient support group

Following on from the conference in Newcastle England

aHUS Patient Family Support Group on Saturday 10th September in London.

 

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Comment by Linda Burke on August 8, 2011 at 11:07pm

Hi Debbie,

Thanks for posting this, and please do keep us posted in both the Events portion of the website as well as blogs with pertinent details.  UK patients and families dealing with aHUS are most welcome to begin a "aHUS in the UK" specialty Forum, free to post questions and concerns that specially apply to your group.  Shared information yields mximum opportunities, so do utilize this website as a place to connect and go forward with your plans for a UK group.  If a UK member is interested in spearheading this effort, I can be contacted at Linda@atypicalhus.org or through this site.

Comment by Cheryl Biermann on August 6, 2011 at 5:45pm
How exciting for you, I think that getting together to meet in person is one of the best things we did.  Each country has it's own challenges and you will be able to discuss these, offer support and hear everyone's stories.  There is nothing like answering the question, "So how is __________?" to someone whose eyes won't glaze over!

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