My beautiful Daughter Destiny

[Destiny Floyd-Rakes]

In Nov of 2009 got sick. I thought it was the flu we went to the hospital and she was admitted on the18th to the ICU at St. Frances Children Hospital we were there for 3 weeks they then sent us to OU's Children's hospital. We got there on Dec 9th 2009, and left on Jan 15th 2010. While we were there we were in the ICU twice because of the blood pressures she got as high as 186/132 she had a stroke and lost her vision for awhile (still has some problems)In this stay her plts... got down to 1300 hgb...4 ldh... 600's (i think it was higher at one point) crt.. 10.? bun... 100's. She had to go threw lots of dialysis and plasma exchange. When home she did good for about 2 weeks she had high blood pressure and had to get fixed that stay was only 3 days. Again home and did good until this last week labs showed that is was flarring up again but bless the Doctors we caught it before it got to bad we did another 4 days of plasma exchange and came home, bless the lord! Now we continue with prayers and taking it day by day.

[Colette Ann Frysz]

My heart breaks each time there is someone diagnosed with this awful disease. I offer you my hopes and prayers that things will get better

[Svetlana Finley]

Hi Sally, thanks for your story i think we all been tru this when first diagnostics and relapse it most hardest part, then u just have to keep eye on everything any changes to catch on time. We be able to save Anna's kidney by catching her relapse on time!! We are praying for Destiny and your whole family!! Keep us updated.

[Amy Swarbrick]

Keeping Destiny and you family in our prayers. Are the doctors still doing plasma exchange now that she is out of the hospital?

[Heather Still]

Thank you for sharing Destiny's story. Sounds like you've been through the ringer. Continue the prayers and keep going one day at a time.

[Grace]

I hope each day brings greater health and wellness and blessings for Destiny and her family! (and everyone reading this)

[Cheryl Biermann]

Hi Sally, it's good to hear your story;though heart-breaking. I would like to assure you that MOST times the first attack is the worse-the doctors are on top of it as soon as they see things going south. You've been through the wringer, now, hopefully, it will slowly get better. We will certainly pray for Destiny. Love the picture of your kids. They are beautiful.