My Blog
Here is a link to my blog. It details my story with aHUS from the begininng. Unfortunately, I have had some bad experiences with my old nephrologist. But hopefully someone can learn from the experiences I have been through, I have also met some of the countries best and brightest regarding aHUS. So check it out!
www.kidneysnotincluded.blogspot.com
JZ
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Comment by Linda Burke on May 15, 2010 at 12:02am -
Glad that your new clinic does such a wonderful job with your care, it's such a shame that dialysis isn't as standardized as many of us thought. I too would love to see your input on the ABCs of dialysis....as well as the scoop on your recent trip to Iowa!
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Comment by Grace on May 14, 2010 at 10:06pm
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Thanks for sharing, Jill! I look forward to perusing it at leisure. I hope the worst experiences are behind you.
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Comment by Jill Ziegler on May 14, 2010 at 11:45am -
Hi Cheryl!
Great idea!!! Let me give it some thought and I will let you know. It will be great when one day we all get the same treatment, ya know?
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Comment by Cheryl Biermann on May 14, 2010 at 11:13am -
I can see, we need to do a lot better job on our dialysis forum-It never occured to me that there are clinics/hospitals out there who do not have an adequate testing/teaching ability-this is such a simple concept! How would you like to help with a new forum on this topic? Feel free to say no because I have no clue as to what kind of schedule you have...
You are right about meeting with your doctors, you have met the celebrities in the aHUS world! Please keep updating us with all your medical activities, forewarnd is forarmed!
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