Well, I received an email from my potential kidney donor. He received news that he has been approved to get tested to become my donor officially. I am approaching my 22nd birthday on the 23rd of this month, and I am becoming more and more hopeful for my kidney transplant, that I will be able to have a normal life soon enough. I am not trying to rush things by all means, this could be my one and only shot of becoming a successful transplant recipient. As my former nephrologist told me "you are a model dialysis patient, but we want to make you a model transplant patient." It is sad to think that my former dialysis team will not really be able to see me get the transplant, like they did the last time, but of course I will be keeping them updated as much as I can, every step of the way. I just hope that I can go on the end of year trip with the vet tech club at school as a possible celebration to my last days as a dialysis patient.
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Comment by Cheryl Biermann on February 19, 2010 at 12:01pm
Comment by Cheryl Biermann on February 17, 2010 at 10:56am
Comment by Donna Kolp on February 15, 2010 at 2:06pm
Comment by Amy Swarbrick on February 14, 2010 at 11:45pm WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
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