Hey there everyone - just a quick update to let you know that it looks like we are all set for Hyde's surgery on March 1st. The plan is for us to be admitted on Sunday, Feb. 28th and we don't have a set time yet but the scheduler said 'noonish' so it definitely won't be first thing in the morning :-(. Hyde's going to be THRILLED to not be able to eat and drink until then - oh well.
If you know anybody that's going to want to be updated on how everything's going Monday - have them get on this carepage - this is how we'll try to post updates once he goes back and as we get information.
The tentative plan is to try to do it laproscopically (to try to take advantage of the 90% chance they don't get near the peritoneum) but the surgeon will be able to switch mid-stream to an open procedure if anything makes him uncomfortable or if there are any problems.
Think that's it for now - Aunt Sarah and Uncle Warren are getting here Sat night and will be staying until Tuesday and Grandma and Papa Talbot will be getting here Sunday and staying 'until we don't need them anymore' ;-). The Tallant's are all here and lined up as well as multiple friends and neighbors as well as all the various church families we can claim ;-) - so we couldn't be more blessed by all the love and support we have.
We'll update everyone as we know more - in the meantime - just to leave you with the kind of character Hyde is - I told him this afternoon to go to timeout for something (can't honestly even remember what) and he said 'Mommy - can't we get a comfier bench?' Jeez louise!!!
Thanks againg - and keep the thoughts and prayers coming - especially next Monday!
Bill, Phyllis, Ruth, and Hyde
Comment
WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
NEW DIAGNOSIS OF aHUS?
Be proactive! Get the medical basics of aHUS, what lab values to monitor, and areas of concern...check out the "About aHUS" tab at the top of this page!
If your doctor has never treated a case of aHUS, please print out our 'Doc to Doc Registry' and ask him/her to contact a physician versed in the complexities of aHUS and new options for 2011 genetic testing and treatment.
************************
NOTE: Our 'Send a Message" function on each Member's page allows for private discussion of personal content. As with any social network, be cautious about giving personal contact information (home email info, phone number) until you have an established relationship with another person, organization, or associated website.
Your tax-deductible purchase of one or more bracelets will directly fund research to help end the tragedy and heartbreak that aHUS families live with every day. Each bracelet has an appraised value of $825, but your purchase price is only $295.

© 2012 Created by ALPHA MARKETING.
Powered by
.
You need to be a member of The Foundation for Children with Atypical HUS to add comments!
Join The Foundation for Children with Atypical HUS