The University of Iowa's MORL team has just announced an innovative study that will provide researchers a better understanding of atypical HUS, from when a patient’s aHUS first appears (acute phase) to when aHUS is brought under control (chronic phase).
Since rare disease populations are relatively small, especially true with aHUS patient numbers, we’re sending out a ‘Call to Action’ and asking all patients to participate. (There is no cost to participate.) There are so many unanswered questions, but data is needed to gain answers – so the the University of Iowa is launching a long-term (longitudinal) follow up of patients at all stages of atypical HUS.
Be part of the team that sheds light on the mysteries of aHUS - and by helping researchers gain more information you're not only helping yourself to build a brighter future, your are in turn helping other aHUS patients now and in the years to come!