Not today :-(
Oh well - guess we got a little overexcited - we really had thought Hyde might be going home today - but not going to happen. The weird thing (though it shouldn't surprise me with us) is that he's been release by Urology (the surgeons) but are staying because of blood pressure isues and nephrology. Apparently some of the BP meds he was on no longer work when you don't have kidneys - so they are working to get the new comination that will keep his BP in control. Unfortunately - one of the ones that will 'work' now is one that taste HORIBLE and Hyde won't really take - so trying to figure out what to do - sorry - just a little bumed now and also feel a little bit like European vacation - big ben/Parliament. I had to open my big mouth this morning about being amazed about being here for suc a small time when we had been here FOREVER for blood pressure problems in the past - oops!
Oh well - hopefully not this time - sorry - just a littl 'gwumpy' as Hyde would say - hopefully it will be tomorrow or Friday which is still better than we originally thought. Also - not sure if anyone remembers - but back in the beginning - Hyde had a horrible time with rashes - we finally figured out it was an allergy to tape remover - and he's been great since then - well apparently they used tape remover in the OR on his face with the vent, and on his wrist where he had an arterial line in because they are now both bright red, swollen, covered in little water blisters, and ITCHY - ARGHHH - this is bothering him worse than the surgery pain right now. Between that and Ruth's tooth (grandma did confirm that it really is loose :-( ) - they are trying to put me over the edge! ;-)
Sorry for the rant - I feel better now - ;-) - we'll let you know how it goes Thanks again for all the support
Bill and Phyllis
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Comment by Amy Swarbrick on March 4, 2010 at 12:21am -
I hope, hope, hope you guys get to come home soon. Hyde is such a trooper and Ruth too. Like Linda said it's hard on the siblings too but it sounds like Ruth is being well loved. Give Hyde a big hug for us:)
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Comment by Linda Burke on March 3, 2010 at 8:47pm -
Give Ruth a big hug for us, such exciting news about her loose tooth! It's 'hard' for the other siblings to have so much attention directed to the aHUS child- Grandma's TLC with Ruth is a true blessing, especially with such a changed home situation right now! (Aren't involved, caring Grandma's just the best!!)
Wishing Hyde stable pressures that allow a speedy return home, with an effective BP combo that's easy to take/administer....hope to see an update from home in the near future!
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Comment by Melissa Hearn on March 3, 2010 at 1:51pm -
Sorry to hear you're not going home today Phyllis. That darned BP always gets in the way of happy homecomings!!! Also sorry to hear about the allergic reaction!
Do you guys need anything?!? I can be there in 20 minutes just say the word! Sorry I didn't make it back by on Tuesday. They held us hostage during his hour of observation, and I had to rush home to relieve Gma from Becca duty.
I am SO happy however that his surgery went well, and that he can still use a PD, I know that must be such a relief for you. Watching for news that you're coming home. :)
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