Hey there everyone - just in case you haven't been able to get on the carepage - Heather mentioned she was having some problems - I'm actually breathing a little easier - see latest update below - but basically so far so good! ;-)
Our night and PD!!
Hey there everybody - I'm sure you are all SICK of hearing from us by now - will try to just update once a day until we get home. Things are mostly good this morning (espcially on the big stuff). I was honestly a little nervous even last night after surgery - but Hyde did his full dialysis last night only 4 hours after surgery and it went well so I'm feeling much better.
Hyde's not feeling quite as good - having some pain from surgery obviously but he's getting to eat this morning and he of course wants chicken fingers - so trying to see if the hospital will make them at 9 in the morning - if not Aunt Sarah will be driving around Atlanta looking for some ;-). His blood pressure was actually LOW last night but back up to 'normal' for us this morning so he got his regular BP meds - we expected this and are hoping he can slowly drop some of these over the next few months. Thanks again and we'll let you know as we find out any more.
Bill, Phyllis, Ruth, and Hyde
Comment
Comment by Colette Ann Frysz on March 3, 2010 at 8:31am
Comment by Jodi Kayler on March 2, 2010 at 9:59am WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
Sharing information, inspiration and support for one another, we seek to gather together people and knowledge as we strive to improve the lives of patients and families dealing with a diagnosis of aHUS.
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