Rare Disease Day is coming soon. This year is extra rare as the last day of February is the 29th.
For those who would like to participate in this year’s video project I’m asking you to create a short video (10 - 15 seconds) where you say who you are, where you’re from, and why you are rare. For example. I might say:
“Hi, I’m Jeff Schmidt from Royersford, Pennsylvania in the United States. I’m rare because I have a daughter Erica with aHUS who teaches young children.”
Or it could be something like:
"Hi, I'm Jane Doe from Bolder Colorado in the United States. I'm rare because I have aHUS and I received the gift of life through a donated kidney."
It can be something simple like that or certainly more creative. But please try to keep the video to around 10 -15 seconds.
Please don’t wait to shoot your video. The deadline for submission is Monday February 15, 2016. That’s only a month away. When you’re done, please email your video to me (Jeff Schmidt) at firstname.lastname@example.org.
Looking forward to seeing what makes each of you rare!