Just thought I'd give you an update on Riley. He is now 3 and a half months post liver kidney transplant. He is doing absolutely brilliantly. Both organs are amazing and he is on the lowest tacrolimus level just 0.5mg twice a day!!
He returned to school 3 weeks ago and is loving it. I will go back to work next week. I actually can't wait after 3 months off. Bet I change my mind after the 1st day back in with a load of cocky high school kids ha.
It's like Riley has had a personality transplant too. He is sooo energentic he loves being able to eat whatever he wants and drink as much as he likes and it is so nice to watch after nearly 2 years of dialysis.
I am so proud of the way he has coped with everything. He is so strong for such a young boy. I am just so happy to have my four year old back the way all children should be. Thriving and enjoying a good quality of life!
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Comment by Linda Burke on March 12, 2011 at 9:44pm
Comment by Cheryl Biermann on March 12, 2011 at 5:57pm WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
The Foundation for Children with Atypical HUS encourages patients and investigators to share information and explore options/resources as we work together to gain insight into this rare complement disorder. By increasing contact opportunities with researchers and medical personnel interested in helping the aHUS community, our stories foster a better understanding of atypical hemolytic uremic syndrome.
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