Hi everyone!
I know it has been awhile since I wrote about what has been going on in the life of Jonathan :) Jonathan started his Senior year of high school in late August, and is loving it! He is now going all day, except for when he gets his plasma transfusions, which is 3x a month. According to his teachers, he is an excellent student, doing well, and I was told that he is VERY social. LOL.....He actually told me he acts differently around us ( Mom & Dad). Well, I knew that :) He turned 18 on Sept. 16th.....That day was bittersweet for me. There was a time that I could not bear to look into the future because I was scared. It wasn't that I felt old, it was the fact that he was celebrating a milestone. That weekend he went to his first Homecoming dance! On a date and all!!! All I can say is WOW......He went with a group of friends, and had a blast.
He is also involved in Partner's P.E. at school to help the mentally challenged understand the rules of sports. Since Jonathan was never able to play, he is able to help those who can play, but just don't understand. This spring he will be involved with the special olympics, as a helper :) I am so very proud of him, and what he is giving back to others.
As I mentioned earlier, we are still doing the plasma transfusions. I am still doing Home Hemodialysis, 5 days a week, 2 hours a day. Jonathan looks and feels great, and his labs are awesome :) I recently was asked to demonstrate to some Nephrologists in the Dallas area, how the Dialysis machine is set up, and show how it is all done.
Graduation is approaching......Announcements, Cap and Gowns, Senior Portraits....I am overwhemed. I am thankful that Jonathan is able to participate and enjoy this monumental time in his life. If only I can stop crying.....
Hope all is well with everyone. We continue to pray daily for all those who are affected by AHUS, and for strength. Lord knows we all need it!!!
Love and Blessings,
Donna
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Comment by Linda Burke on September 28, 2010 at 10:46pm WELCOME - Friends, Family Members, Patients, and Researchers - JOIN US!
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