Recently, Health Minister Dr. Eric Hoskins of Ontario, Canada announced that Soliris would finally be made available to those on dialysis and in need of a kidney transplant. This would be good news except that these patients will get a maximum of 6 months of Soliris and we all know that once Soliris is stopped, the transplanted kidney may be destroyed. These patients and their doctors are not likely to want to take the chance of triggering another aHUS attack so they are not likely to go through with a kidney transplant.
Please help our Canadian friends by going to Dr. Hoskin’s Facebook page and posting your views on this and making comments on his posts If enough of us do this on a regular basis (every time you log onto Facebook would be awesome!) we can make a difference.
Today I posted on Dr. Hoskin’s page one of the emails I sent him.
Tomorrow I might just post, “Please Dr. Hoskin’s, make Soliris available to dialysis patients with aHUS for longer than 6 months.”
Or if he posts something about making some other drug available I might comment, “That is great that you are making this drug available. But don’t forget about those on dialysis with aHUS who will need Soliris for longer than 6 months. This is a chronic disease and there is no cure. Just a treatment. After 6 months when the Soliris is stopped, that kidney will be destroyed.”
Here is Dr. Eric Hoskin’s Facebook page. Please join me in putting the pressure on.