So sorry for my absence

[Heather Still]

Sorry, it's been a while since I've been on the site - people must think I've fallen off the face of the earth.

I posted pics for our golf tourney that we held late September. We raised $9000+ again this year for the foundation.

We've been toying with Ryan's infusions and tried spreading them out 4 weeks, but his lab results showed that was too long so we are going back to three weeks again. Hopefully that will keep things stable. Ryan started 6th grade this fall and it is a lot of work so I hope we can keep things under control so he doesn't fall behind.

I started college full time in August so I'm a little overwhelmed right now and don't have much time for anything extra. Between the normal aHUS visits, eye doctors, dentist appts, kids homework, and all the other everyday mommy/wife duties along with my own school work I find that I have very little time left at the end of the day. I've read through a few blog posts and it looks like I've missed a lot in the aHUS world!!!! I must get better about checking in with everyone.

Well wishes to all the families and I hope to have a minute to check in again before Christmas!!!! LOL

[Joy Lewis O'Brien]

Hey Heather, great news about going back to school! You'll be amazed at how much you already know from your experience!

[Bill Biermann]

Just to reiterate.........the Still family have supported the Foundaition in many capacities. IN hte early days, they were helpful to parents via the phone. Also, they have volunteered their MDs to help in various ways. Finaly, the financial support probably accouts for 1/3 of all monies raised over the past 8 years! many thanks. and to think that you decided to help other people via nursing! Wonderful

[Kerri Grey]

Hi Heather i know how you feel with lack of time...i too am studying nursing (RN) at the moment, i applied before Ash got sick and found out i got accepted 10 days after Ash got sick so it was all very full on and it certainly does not leave you with alot of spare time... stick at it, it will all be worth it in the end (I hope!!!) and congratulations on your fabulous fund raising what an awesome contribution to the Foundation!!!

[Grace]

Double kudos to you for a superb fundraiser and having the courage and determination to go back to school on top of being a full-time mom! I'm sure you'll be a great nurse!

[Cheryl Biermann]

Pre-nursing, how cool! Think of what you will bring to the table in terms of knowledge, compassion and skill! If I am to believe the nurses at Glennon, you are already half way there, being a parent of a child with aHUS!

See, I told you everyone, The Still's Rock!!!

[Heather Still]

I am in the Pre-nursing program and will start the Nursing program (RN) next fall. Yeah, I'm PTO president this year and Optimist Club secretary/treasurer too. I forgot about those LOL. I've been utilizing a little child labor in clipping all the box tops our school collected last year to prep them for mailing in - fun!!! We're almost done and should have atleast $700 for the PTO.
And yes Cheryl....I think this year puts us at around $82,000 raised for the foundation :)

[Linda Burke]

Ryan's Hope 2010 raised $9000. for aHUS research with golf fun in the sun....tremendous! Please thank your friends and family for all their efforts contributing once again to this major fundraiser for The Foundation for Children with Atypical HUS. Wow - such a busy household (you forgot to mention trimming Box Tops for Education for your parent-teacher organization. Me too! LOL) Best wishes in college...what are you studying?

[Cheryl Biermann]

It's great to hear from you Heather. I hope Ryan's numbers weren't down for too long after the four week attempt. I hope your adventure back into school is all you are hoping for and finally, a Giant thanks for all the fund-raising you have done over the years, isn't it close to $80,000? total? You guys rock!