Here in Australia Soliris is not an available drug for aHUS, it late last year became approved by our governing body - TGA
but now we need to get the governemnt to fund the use of the drug (our health care system is different and our insurance companies dont pay for medications) Alexion have submitted an application to the Australian government to approve the funding of this drug to make it accessible to all in Australia with aHUS.
The link below is for patients/carers/family/friends.....anyone.... to make a public submission for the government to consider when making their decision... if anyone has the time (only 5 minutes) to fill out the form online and submit it all of us here in Australia would be so grateful as the more people that make public submissions hopefully the louder our voices will be heard by the government!!!
Thank you so much