The Atypical HUS Foundation

U of Iowa's 2011 aHUS Family Conference Video Posted

     Talk about a wonderful Valentine's present for the world's aHUS community - comprehensive video presentations about atypical HUS!  The University of Iowa has robust patient and research programs that provide cutting edge information and services to aHUS patients and their families (see The University of Iowa Children's Hospital http://www.uihealthcare.org/PediatricKidneyDisorders/).  At an October 2011 aHUS Family Conference sponsored by The Foundation for Children with Atypical HUS, those in attendance at the University of Iowa heard presentations from Dr. Richard Smith, Dr. Carla Nester, and Dr. Christie Thomas regarding a variety of topics of great interest to rare disease patients with atypical hemolytic uremic syndrome.

 

     The Foundation for Children with Atypical HUS wishes to thank the presenters for providing the latest research and data in clear, concise detail about vital information regarding aHUS diagnosis, treatment, genetics, and disease mechanics.  Complex issues regarding this complement-mediated disorder are now presented in a video format that serves to inform patients, families, and medical personnel via the following links:

 

*  Dr Carla Nester's topic:  Definition of aHUS, Diagnosing aHUS, Overview of Complement    

(length approx. 27 mins)

View Dr. Nester's presentation at:  http://www.youtube.com/watch?v=laVuvyqwwjo 

 

*  Dr. Christie Thomas' topic:  Treatment of atypical HUS:  Plasmatherapy, Eculizumab (Soliris), Options for ESRD, Transplants, Data from published studies/reports   (length approx. 33 mins)

View Dr. Thomas' presentation at:   http://www.youtube.com/watch?v=-e9COG8elf4

 

*  Dr. Richard Smith's topic:  Atypical HUS, Genetics, and the Complement Cascade 

(length approx. 32 mins)

View Dr. Smith's presentation at:  http://www.youtube.com/watch?v=dsoHbqwoi9w

 

 

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Carla M. Nester   MD, MSA

 

Assistant Professor

Director, Pediatric Glomerular Disease Clinic

The University of Iowa

 

Presented on Oct. 8, 2011

Atypical HUS Family Conference, held at the University of Iowa, USA

 

Topic:  Definition of aHUS, Diagnosing aHUS, Overview of Complement    (length approx. 27 mins)

View this presentation at:  http://www.youtube.com/watch?v=laVuvyqwwjo     

Bio for Dr. Nester: http://www.uihealthcare.com/depts/med/pediatrics/pedsmds/nester.html

 

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Christie P. Thomas  MD, MBBS

 

Professor of Medicine

Division of Nephrology

Medical Director, Kidney Transplant Program

University of Iowa:  College of Medicine

 

Presented on Oct. 8, 2011

Atypical HUS Family Conference, held at the University of Iowa, USA

 

Topic:  Treatment of atypical HUS:  Plasmatherapy, Eculizumab (Soliris), Options for ESRD, Transplants, Data from published studies/reports   (length approx. 33 mins)

View this presentation at:   http://www.youtube.com/watch?v=-e9COG8elf4

Bio for Dr. Thomas:  http://www.uihealthcare.org/physician.aspx?id=18819

 

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Richard Smith, MD

 

Professor and Vice Chair

University of Iowa

Department of Otolaryngology

 

Presented on Oct. 8, 2011

Atypical HUS Family Conference, held at the University of Iowa, USA

 

Topic:  Atypical HUS, Genetics, and the Complement Cascade  (length approx. 32 mins)

View this presentation at:  http://www.youtube.com/watch?v=dsoHbqwoi9w

Bio for Dr. Smith:  http://www.uihealthcare.com/depts/med/otolaryngology/faculty/smithr...

NOTE:  Dr. Smith is Director at MORL (Molecular Otolaryngology & Renal Research Laboratories) http://www.healthcare.uiowa.edu/labs/morl/ (genetic screening for aHUS patients) 

 

2011 Video Clip Library!

See topic specific video clips from all the 2011 University of Iowa presenters- indexed by topic.  If you are interested in a specific topic, from aHUS Diagnosis to Genetic Mutations, skip to these highlights from the full presentations.

Click HERE to view to 2011 Video Clip Library

 

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Comment by Melissa Hearn on February 23, 2012 at 2:38pm

Thanks for posting these.

 

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