We celebrated Matt's 23rd birthday yesterday! 15 months after diagnosis, we still are endlessly grateful that he is with us.
I am looking forward to the future with so much enthusiasm for what is in store for him and all of us, with Soliris being available.
For anyone who has not attended a meet up, I encourage you to consider attending. Putting a face and a hug to someone who has walked your path is unbelievable. To reassure the family who is new to this disease is rewarding and to see and hear the success stories of the veterans and meet the founders has been awe inspiring. Not to mention how very cathartic and helpful to find out how much help is out there for us!!
I look forward to attending whenever is possible in 2014, and hope to see familiar faces and meet new friends.
Blessings to All,