Update on Anna

[Svetlana Finley]

Anna is been doing well, it is been 2 month with out treatment. She still takes iron supplement and lisinopril for BP. She still has some blood in her urine with dip stick it showing 2+ and little bit protein. Rest of her labs looks great even sometimes she looks soo pale it will go thru my mind "if she is ok". We praying that she won't relapse anymore. We still getting her labs done every 2 weeks, our next dr. app on May 24.

She is back to gymnastics, but having hard time to catch up with her team (almost 2yr. with out work out) She is worrying about competitions in September it is very short time to catch up and be ready for meets. She (and me) also worry about if she will get relapse, she will have to get back to plasma exchange, because for Soliris trial for 12yr. and up is closed and not taking anymore people.

So we just take day at the time and do what we can to stay healthy ;-)

Have a great day

Sveta

[Theresa Pereira]

Great - glad to hear.
Keep me posted on her health
rgds.
Terri

[Svetlana Finley]

Hi, Theresa
Yes we started her on Acai berry i get at health store here ;-)

[Theresa Pereira]

Thanks for the encouraging update.
I understand what you mean about the "pale look"
Since you recommended Olivia be on Iron suppliment (Anna is) she has more color - Thank-you!
Have you put Anna on Acai berry?
Best wishes and lots of prayers.
Terri

[Amy Swarbrick]

Glad to hear Anna is doing so well. I know what you mean about getting worried everytime they look a little pale or are a little grumpy. But that's what makes us good mommies....we care:)

[Cheryl Biermann]

Happy Days! Enjoy them and that's an ORDER! Sorry the trials are closed to Anna, I'll keep it in my prayers that she is well for a long, long time.

Tell her that Nathan also has a hard time keeping up physically, but because he keeps trying, the other kids are always encouraging him, I think he inspires a lot of the adults. He was in a track meet and came in dead last, but people, (adults who know his situation), stood up and clapped when he crossed the finish line. Anna is an inspiration also to her friends on the team...they just might not know it yet, she inspires me, anyway!
Good luck and God bless.

[Phyllis Ann Talbot]

Svetlana - great to hear that things are going well for now! Fingers and toes crossed that they stay that way for a while - and good luck to Anna on the gymnastics!