Update on Brody Man

[Amy Swarbrick]

So we had a little scare last week when Brody woke up pale one day. He had also been fussy and was a little puffy in the face. We got him in for labs right away and everything was still stable...whew. I was convinced the hus was acting up again. Especially since he has had a cold on and off for almost a month in a half now. I'm glad I was wrong. I guess I just figured if I expected the worst then I wouldn't be devastated when they told me the news. Still you can't be too overly cautious with these little ones.
The doctors decided to go through with the planned surgery and on Tuesday Brody had his central line removed. It feels so good to rub my hand on his chest and just feel skin. He hasn't had his first full bath yet as we have to wait a couple days but we are counting them down. Brody is so funny, we ask him "where is your tubie?" (that's what we called his central line;) and he replies in his excited voice "all done, all gone."
Brody hasn't had any ffp since August and is still holding stable without any meds. We realize with him having the "dreaded factor H" (sorry that's just what we call it ..half joking, half not if you know what I mean) it could just be a matter of time before his next relapse. All we can do is love him everyday and pray he will stay in remission a very long time (umm I'd like to put my order in for forever). At least for now I don't have to worry about line infections:) I am a very crazy lady about these things. Did I say crazy, I meant concerned.
Hope everyone has a great Christmas.

[Sara Palmer]

What a relief to get that line removed Amy. I truly hope that Brody remains healthy and the treatment line is a thing of the past!

[Jodi Kayler]

All I want for Christmas is my tubies out! Congrats!

[Joy Lewis O'Brien]

Congrats, Amy! I'm glad to hear that Brody wasn't sick and that he got his tube out!

[lisa ann peterson]

lol....i get so worried when chloe gets a cold tooo.. i never know what to expect and it makes me crazy sometimes.. hope you guys have a wonderful x-mas

[Svetlana Finley]

That is great, he is finally line free and doing well ;-) Specially he get to play in the tub and u don't have to worry about line infections!!!

[Linda Burke]

Whew...such a relief to hear all is well, God bless you all ! Can't wait to see a bubblicious photo of Brody posted here soon!

[Grace]

That's fantastic that Brody is stable and shed his tubie! Loving him everyday and praying sounds like an excellent plan.

[Cheryl Biermann]

Whooee! I hope he gets in all the splashing he wants, too bad it's winter and not summer swimming too, but that will be here before we know it too!

[Phyllis Ann Talbot]

You are too funny Amy!!! SOOO glad Brody got his line out - and yipee for the first bath when he gets it!!! Hyde LOVED his!!! By the way - you and me both are crazy - but I like to say it's crazy in a good way ;-) and so glad his labs were stable - have a very Merry Christmas!!