Waiting for test Results!

[NATALIE WALLACE]

Ben is doing well. He just turned 5 on Aug. 24th. In the hospital CHOP a few times this summer. Treatment FFP and Steroids did the trick. He was home each stay within two days. Much better than before. Still gets FFP every ten days. On lisinapril for BP. That seems to work for him. Waiting for lab results from Iowa from Dr. Brophy. Thanks to this web site he and his team have been helping us. They are a great team of doctors. Hope we find answers. Patience is hard.

I have been keeping up a little on the site. Keeping you all in my daily prayers!!

If anyone has a child with this disease please have your other children tested. Better to know than not. Our baby now 20 months was tested at two weeks old and she is fine. Praise God! Leah is a wild one!

Olivia is 7 and getting big! Doing ballet and soccer this Fall.

Zach would have been 10 this January. So hard still. Always will be. He passed in January 2005 only 3 days after his fourth birthday. We miss him!

Ben is going to be homebound for school this year. I will be his teacher. I am getting paid by the school district since I am elementary certified. Anyone who has to homeschool get certified and then your child will be concerned homebound and you can get paid. He is learning braille. I am learning too. He vision is still not great. He can see colors and some shapes.He is happy. He has OT, vision, O&M and behavior specialist to help us with the traumatic stuff. He loves Thomas the train. He is happy! God Bless you all and may you have peace in your hearts always!

[NATALIE WALLACE]

Thank you for your kind words. I am thankful for this web site and hope it helps other families, like it has helped ours. I know that Zach, Billy and Hunter are in heaven playing with one another. Just wish they were here with us. God's plan is bigger than ours.
God Bless you all.

[Cheryl Biermann]

Happy Birthday, Ben! Congratulatons on beginning kindergarten, you'll have so much fun learning new things, I'm sure you will amaze everyone when you learn braille! When I was homeschooling my children, my daughter was in kindergarten and it took her forever to remember all her alphabet, but when she finally did, she loved learning new things by reading about it herself.

Natalie, I'm so sorry you suffered the loss of Zach, there is not a day that goes by without my thinking of Billy and he has been gone almost 14 years. But even in the pain, these little boys were such a gift to us! I know they are part of our strength in dealing with the hardships and scary times that goes hand-in-hand with aHUS too. I know that Billy is a huge reason why my husband began the foundation and Linda and her brother began this wonderful website was because of Hunter's inspiration. Their legacy is like Zach's in that all three boys inspired the people around them to reach out and make a difference like your family has done with your foundation. Bless you and yours, and keep us in the loop! Good luck with school this year!

[Linda Burke]

Natalie, thanks for the update on your family - you are a true inspiration to me! So glad that the U of Iowa team is in your corner.....God Bless them, they help so many families and I'm pleased that such fine doctors are working with Ben (Happy Birthday, sweet Ben!!) .
I'm sure you celebrate Zach's life in many ways but still, the loss never seems to get easier..... It's my big daily goal, but I always try to take the joy of being Hunter's mother and turn it into a positive action that someone can enjoy or be uplifted by. Some days seem more challenging than others. Sending a big hug your way, Linda