What a week - and BP meds help

[Phyllis Ann Talbot]

OK - here's the latest carepage update - and hopefully the last one until our next clinic - I do have a question for all of you out there that have had nephrectomy's - one thing I had not been told prior to Hyde's nephrectomy was that a couple of his meds would no longer work since his kidney's were removed (would have been nice to know before - but oh well). They have taken him off his Cozaar and Captopril. Right now he's on Norvasc (amlodipine) and Atenolol (this as opposed to Labetolol which is NASTY compounded). What other options does he have for BP meds if this doesn't control him? We are hoping that eventually we'll be down to just 2 or even less - but were expecting to need as much medicine as before for a while - so wondering what else they can add in? His BP's are running high on the meds he has now - trying to get his weight back down - after his liquid party at the hospital he got a little heavy so thinking a little bit might be fluid - but don't think that's the whole thing. Thanks!

Well - we made it this far! Hyde did great last night - slept as well as normal for him (still up 3 times but hey - that's what he does ;-). We all got some rest. He woke up ready and raring to go - was in time out 2 times before Ruth even left for school at 8 (and no - he DOESN'T need a cushion for the bench - thanks for all the offers). It's going to be a long 10 days trying to keep him 'calm' so all his internal stiches and skin glue can heal up. So far this morning I've had to convince him to crawl back out from under the bed where he was playing, to get down off the arm of a chair, and to stop flipping upside down in a chair so he can 'see everything looking upside down'!!! And that's with me and Grandma and Grandpa Talbot all here!! Whew! it's really amazing how quickly kids come back. Prayers have been answered so far!

Of course the 2 biggest things are his face and arm rash (I know people think I'm being dramatic - but you really wouldn't believe what his face and arm look like - ugghhh) and of course his blood pressure is still up - he's on some different BP meds than before the surgery and probably overall less medicine - so hopefully we can increase some doses, etc and get this stabilized soon.

Right now we have his clinic scheduled for the 15th - so I'll plan to just update then so ya'll can all get a break from us ;-). Thanks again and if anyone has some rope they can send our way to keep him tied down? He's not allowed to ride his bike or pedal for 10 days and it's supposed to be high 60's and sunny this weekend - so should be fun :-).

The Talbot's

PS - several of you have asked - we'll be sure to update once 'THE TOOTH' comes out for Ruth and let you know how she fared with the tooth fairy - the novelty has worn off from Ruth but Hyde's pretty excited 'Ruffie's toof is falling out!'

[Colette Ann Frysz]

Jessica had been on norvasc, a catapress patch and when her pressures rose above 140/90 I had to give her a quick acting sublingual med propananol. She was on this combo for a number of years early on. Norvasc is pretty strong and many a time she was just worn out with the meds. I'm hopeful that Hyde can start decreasing these meds soon but my experience is that it still takes time. Just hang in there, his body is still adjusting and that is a big part of the process. Slowly things will stabilize. That is most important.

[Grace]

I'm glad Hyde is feeling well enough not to give you a minute's peace (though I hope you get some of that, too.) I hope his blood pressure problems resolve soon!

[Bill Biermann]

Sorry I can't help with the BPs looks like Hyde is on the same things Nathan has always been on! Good luck with Mr. Active, capital A!

[Amy Swarbrick]

Wow, glad to see he has bounced back so quickly...literally:) This age is so fun! Hope they can figure out his meds soon, that's pretty frustrating.

[Jodi Kayler]

Go Hyde! Raise the roof little buddy! LOL =) I will always remember when Coen was 3 and it terrified as he would continuously launch off the sofas like superman and slide down the stairs full speed on his tummy with a external hickman line. Seriously, these kids are tougher than nails. XOXO's to your fam from the Kaylers

[Phyllis Ann Talbot]

Thanks Heather - that's actually at least new names - I had thought we were stuck with the Cozaar and Captopril plus what we are on and that was about it before Minoxidil and/or Clonidine - so hairy or zombie - thanks! My sister REALLY wanted to go to that thing tonight in Bingington to meet you and help our the other family but she didn't get off until almost 7 and then was going to be a 2 1/2 hour drive - so I told her not to but to just donate on-line. Hope it went well!

[Heather Still]

Not sure of a real answer for this because Ryan hasn't had a nephrectomy. But his bp has always been an issue. He is currently on Coreg and Dynacirc and compounded Lisinopril. And wears a Catapres patch for bp too. Not sure if any of those help you, but that's what works for him.