Hunter Burke Slideshow: Turn up speakers!

Comment

Comment by Lisa L. Brown on February 29, 2012 at 11:58am

Every time I watch this, I think, why couldn't they have had something that worked for Hunter? He was such a cute little boy, clearly full of wonder. My hope is that a cure will be found, sooner, rather than later.

Comment by Virginia (jenny) Aguallo on March 28, 2011 at 12:55pm

What beautiful children.  I am Ben Aguallo's grandmother.  I am so sorry that you had to lose Hunter to this terrible disease, but I am thankful for the drug Solaris that has enabled to to continue having Skyler in your life.

I appreciate the many conversations to my son, Jonathan Aguallo in reference to his son, our grandson, Benjamin Aguallo.  You can't even imagine how much your support has helped Jonathan and Beth.  It will be a year in April since Ben was diagnosed.  As you remember too, the months go by slowly and your entire life changes.  You learn medical terms that you've never heard of, lots of testing, questions, whys and why nots, answere and no answers.

Maybe one day there will be a cure, but for now I think Solaris is the drug to enable our children, grandchildren to lead almost a normal life.  We take  one day at a time and be thankful they are still with us.

 

Thanks again for all your support and I will continue to pray for Skyler in that he will continue to do well and be around for a long, long time.

Comment by Steve Greene on October 29, 2009 at 10:04am

Hi Lisa -- thanks for your persistence! I think the problem must be on your side ... just watched the video through. Not sure what to suggest..? Steve

Comment by Lisa L. Brown on October 28, 2009 at 8:24am

I keep trying to watch Hunter's video. Is it "down" or something. I have not been able to get it to work for weeks.

So, I am not sure if it my computer, or something else.

It is nice to see that families have this nice connection. It sounds like your conference in Iowa went well too.

Lisa B. :)

Comment by Lisa L. Brown on September 18, 2009 at 12:42pm

For some reason I cannot get the video of Hunter to come up, my work computer is acting a bit "off" but I wanted to watch it again.

Lisa Brown

Comment by Teresa G. Craig on July 26, 2009 at 10:03am

Thoughts of (To) Hunter- I'll have you in my heart forever and treasure so many memories! We all shared mommy and daddy's excitement and anticipation of your arrival into this world. On seeing you for the first time, I recall how thankful I was that mommy trusted me enough to pick you up and hold you close. You were content to hear my heartbeat because it sounded so much like mommy's. We had some fun times at the Barbara Bush Children's Hospital riding the red cars past the colorful walls and round about the fish tank! It was inside those red cars that orange popsicles and tomato soup tasted their best! Hunter, you were very clever, and it wasn't long before your vehicle began rocketing down the hallway ramp at breakneck speed accompanied by your squeals of delight! You were always full of fun on visiting Auntie Terry and Uncle Gary's home. Lights and fans switched on, doors opened and shut, and the piano began making music. Blankets became forts. Hide and seek always found Hunter and Skyler conspicuously entangled within Auntie Terry's curtains. Fishing the pond with Uncle Gary and riding his heavy equipment were happy highlights. Our neighbors remember your compassion with their little son, guiding him down a staircase. Your caring spirit continues on as that child now, in kind, guides his baby sister. You thrived on the joy of giving, often carefully unwrapping one of your own creations to present to Auntie Terry. Hunter, you have touched our lives. With love...and hope for a cure.
Auntie Terry

Comment by Lisa L. Brown on July 24, 2009 at 11:27am

WOW, everytime I watch this, it just makes me so wish that more was known about this condition so that Hunter would still be here with his family and friends. I find myself watching this at least once a day. To see the entire family having so much fun. I know you each is very strong and that Hunter is in your hearts always. I always remember you telling me Linda, how much he loved being a big brother to Skyler and that is so evident in many of the pictures.

Lisa

Comment by Lisa L. Brown on July 22, 2009 at 8:44am

I watched this video of dear Hunter and family and it just made me smile and feel sad for their loss. Yet i know this cute little boy will live on in the hearts of his mother Linda, father Brad, and brother Skyler.

Lisa Brown

Comment by Steve Greene on June 11, 2009 at 1:41am

Me too. Sometimes I hear this song on the radio (Audioslave, "I am the Highway") and it stops me in my tracks every time. We miss Hunter so much...

Comment by Linda Burke on June 11, 2009 at 12:00am

This always makes me cry- but with such joy for the wonder and happiness that Hunter brought to our lives! Our sorrows are written in sand but our blessings in stone. Thanks for such a moving tribute to Hunter, Steve. Linda, Mom to Hunter and Skyler